We are 36 weeks today and- in this moment I am feeling hope and peace. Moriah and I picked out the first outfit we would like Samuel to wear after he is born. We picked out the receiving blankets we plan to take to the hospital and she insisted on sifting through her books and picking a few to put in Samuel's room-- she picked the one's that she thought he would like best.
The days following my last post have been up and down. On Monday- we learned that Samuel had grown a little from the week before- but still not much. Moriah and I heard his heartbeat and marveled at how it increased at the sound of her voice (so cool). At the same appointment- we learned that there is much trepidation --on behalf of the medical staff where we will be delivering-- regarding our labor and delivery. I am going to choose not to share much on this-- as it makes me quite emotional and because I understand that our story carries with it many unknowns that are not only daunting to us but also to those who are being pushed out of their comfort zones as they care for us. All I will ask (and I have asked it before) is that you please pray for those medical staff who are meant to be with us as this story unfolds. Please pray that the right people are on shift at the right time. That they will see that we are just as scared as they are- and that we trust them implicitly - as we believe that they are (will be) hand picked for the job. Pray for us to have a confidence in them (that results from our trust that God will orchestrate the right care team) and pray for the staff to have a confidence in their decisions and assessments of Samuel and myself. Pray for a peace that passes all understanding to reside in our labour and delivery room.
Tuesday and Wednesday were tough. I felt little to no movement-- to the point where I truly believed that our time with Samuel- in utero- had come to an end. This resulted in a series of emotions, much prayer, practice of surrender, hurt and ultimately an odd peace. I asked for God's grace as we celebrated Chris' birthday yesterday and I decided that I would not go to the doctor until today- to confirm the loss that I believed had taken place. Chris and I were blessed with a wonderful evening out last night while Granny and Grandpa spent time with Mo. Shortly after dinner and while we started our movie- Samuel decided he wanted to celebrate Daddy also- I do not think he has stopped squirming and kicking since. It was this shift that caused Mo and I to move forward in hope as we picked out his outfit and blankets today.
We were blessed once again by Chris' faithful Grandma. She called today as she is aware that we are on the four week (ish) countdown. As she would say- "in a month, everything will be revealed." She said her word for us today is this reminder: "Let Him have all your worries and cares, for He is always thinking about you and watching everything that worries you and concerns you....He will not lay more on you(us) then you can handle." Not only do I LOVE her reminder of a verse that has always been very dear to my heart but I LOVE the reminder that - this was something He has for us in order to help us face today. We continue to put one foot in front of another- and to watch and see what the Lord will do.
One final request-- Chris will be away on an overnight with Trinity Hockey this weekend. We feel as though he should still go but I ask that you pray that there would be no fears of labor or anything else out of the ordinary-- while he is away.
A picture of my kiddos and I. Before becoming a mom- I did not know love like this. Thanks for reading and praying.
Thursday, January 23, 2014
Sunday, January 19, 2014
A Story Unfinished
I borrowed the title for today's blog from a book I am currently reading called "A Story Unfinished" by Matt Mooney. The author and his wife had 99 days with their Trisomy 18 son- Eliot. The book showed up in our mail a week or so ago. Our dear friend Trevor sent it to us. Trevor had told Chris it was on its way- but I missed the memo-- so I was pleasantly surprised at this seemingly unannounced gift. It came- just when I needed it.
I have not written since Christmas. Many of you have checked in via email, text, phone and I even notice continued hits to our blog- despite my lack of updates. Thank you for caring. I have not had the words to write. Or- the emotional gumption. I apologize to those of you that have wondered if something is going on- as a result of my silence. Our status stands. Our last appointment was January 13. Samuel had not grown much since our appointment three weeks earlier (so my weight gain really was due to all the Christmas goodies that we had kicking around our house :-)). Despite this- his heart was still strong and my body shows no other signs of anything being out of order. We were 35 weeks this past Thursday which makes us 35.5 weeks today. Only 4.5 weeks to go to the due date...
I suppose this is why I have had trouble writing. Christmas was a wonderful flurry of activity. We had the most amazing time with family and friends. Suddenly- this joyous distraction ended. Family went home, decorations came down, the flurry of activity- waned into the routine of day to day (something which I generally welcome). I felt the let down this year-- big time. To busy myself up- I was thrown into full nesting mode. I sorted all of Moriah's baby clothes and pulled out everything gender neutral we own. I washed all the precious outfits and blankets that represent the hope of being able to change Samuel and snug him and feed him and have him spit up so I have to change him again. I prepared his bassinet and moved the rocking chair into - 'his room'. As my nesting instincts ignited- I began to dream. I wanted to do it all. To paint. To buy Mo new furniture- so we could move our 'baby' furniture into Sam's room. I am ready for his physical and mental healing-- here. Not in heaven but here.
Then- my Poppa passed away. Boom. Really- Lord? Now? Oddly- since we have had kids begin to enter the Kielan side of the family-- (something that has proved to be quite a feat all around)-- it seems that one of the older (or sometimes not very old) members of our family moves on. My Grandpa passed away a week after we found out we were expecting Moriah. My Uncle Grant passed away a week after Dan and Christine found out they were expecting Tate. And now Poppa-- but Poppa and Samuel-- really? In a span of 7 weeks? It couldn't be. It feels like too much. After my initial reaction - I began to take the storm in stride. Though I miss Poppa and I love him very much-- I know his current reality is better than the direction his health was taking him. It was my pleasure to at least play a small part in some of the preparations for his memorial and I enjoyed reconnecting with family that lives far away as we reminisced over his life.
Despite this- I could not write. Tears were not only a daily occurrence but flowed freely multiple times a day. My time with the Lord was not great- only because I tended towards other avenues of escape. I felt discouraged at the seeming unfairness of our situation and I felt low.
Then my 'surprise' book arrived in the mail. When I could not open my Bible - I opened this book (no replacement for my Bible whatsoever but still offering stories and words that I can relate to). I also began to listen to some online speaking sessions my mother-in-law directed me toward long before Christmas- but I finally felt the motivation to take the time with them. These sessions focus on the Missing Pieces in life-- the things in life that just do not seem to make sense. So- with a story unfinished and thoughts about life's missing pieces-- I began to realize that part of my paralysis to spend time with the Lord- or to write- over the last number of weeks- has been due to our impending due date. Though our story will not be finished in 4.5 weeks (or less- or possibly- a little bit more) the plot will thicken. Though there will still be many missing pieces-- a few more holes will be filled in.
When we first found out about Samuel's chromosomal disorder and resultant prognosis-- I could not have imagined making it to the new year-- let alone to our due date. I was sure that the Lord was going to take Samuel before this time and - to be honest- there is a part of me that really wanted him too. It seems that the sooner Samuel went home to be with the Lord-- the sooner- we could grieve and the easier it would be on our hearts to not really have known him. The very thought of a lengthy pregnancy -exhausted me. And- now- here we are: January 19, 2014. Now--- I am fighting for him. Now- I beg the Lord-- please do not take him before we have a chance to feel the warmth of his skin. To caress his baby soft head. To hear his cry. To get this close- and then to not have these precious moments- seems unbearable. I read about Matt Mooney's 99 day journey with his son and it both intrigues me and exhausts me. It causes me to fear what life may look like over the next while- yet it gives me hope that we will have time to know Samuel. It causes me to fear for Moriah's well being (in wake of the emotions surrounding time with her brother) yet it causes me to dream with her regarding all the plans she has already laid out for herself as a big sister (my favorite of which is-- Daddy will take care of the poopie diapers but I (Moriah) will take care of the pee ones-- sounds like a great deal for Mommy!).
In combination with the encouragement I have found through my listening and reading over the last little bit- I have also found much encouragement from our dear friends and church family. Last Monday - we were blessed by many people in our church community and beyond who spent time fasting, listing to the Lord and surrounding us in prayer. Though we have been offered prayer by many- we wrestled with accepting (specifically in a group context)- when we initially found things out. It is hard and humbling to receive prayers from your community-- why? I am not sure. But it is. Our dear friends gently persisted in asking us-- and the Lord prompted us to respond. Why would we not take them up on this offer? What pride issues are in our way- to cause us to prevent our church body from being obedient to the type of actions God calls us to in community? What self consciousness in me would outweigh the gifts of being surrounding in prayer. And - oh what a blessing that time was. We were filled with peace and rest as we kept our eyes on Him and as our community pleaded with the Lord for healing of our son. We were filled with reassurance as a room full of people showed their love for our precious Moriah- and prayed protection over her in this time. We were genuinely cared for as our marriage was prayed for. As the medical teams that we are and will be dealing with were prayed for and as God was glorified- despite the uncertainty that we currently face. Our hope was renewed. I woke up the next morning and I felt covered (Under His wings- did I find refuge). Once again - our arms felt lifted up- in this battle that days before we were losing because we were not tapped into the source that will fight for us. Our home experienced a renewed sense of joy and a lightness though no medical prognosis has been changed and though the outcome is still pending.
I believe that God can heal Samuel. In an instant. I even feel giddy at the thought that such is already the case. But my heart is guarded. I have seen God give (or heal) and I have seen him take away. I do not understand how He decides which action to take at which time-- but I know He is in both and I still believe He is good. (Samuel- liked those words-- HE IS GOOD-- he gave a double flip flop- just at the sound of them!).
Please continue to stand with us in prayer. We need you.
Pray for a continued peace that passes all understanding
Pray that we will hear God- in each moment of our day- that we will see Him and that we will rest in Him.
Pray for labour and delivery-- not only because it is approaching but also because we have some upcoming meetings with the staff at Langley hospital to try to best prepare ourselves and the staff for all the unknowns.
Pray for our Doctor- Dr. Hansen-- that God would give him wisdom and sensitivity to His direction over the next number of weeks as we have weekly appointments.
Pray for Moriah- who has been experiencing many bad dreams and unsettled feelings over the the last couple of weeks-- we know this is taking an emotional toll on her.
Pray that our words, actions, responses, blog would point to Christ- for that is the only way we see any redemption in any of this.
Pray for Samuel- for his healing. Pray that we will get to bring him home. Pray that his mind will function healthily and that his body will be whole.
Thank you for taking the time- to catch up and to walk with us. I will try to give more regular updates - even if they are quick ones! Bless you.
Seren
I have not written since Christmas. Many of you have checked in via email, text, phone and I even notice continued hits to our blog- despite my lack of updates. Thank you for caring. I have not had the words to write. Or- the emotional gumption. I apologize to those of you that have wondered if something is going on- as a result of my silence. Our status stands. Our last appointment was January 13. Samuel had not grown much since our appointment three weeks earlier (so my weight gain really was due to all the Christmas goodies that we had kicking around our house :-)). Despite this- his heart was still strong and my body shows no other signs of anything being out of order. We were 35 weeks this past Thursday which makes us 35.5 weeks today. Only 4.5 weeks to go to the due date...
I suppose this is why I have had trouble writing. Christmas was a wonderful flurry of activity. We had the most amazing time with family and friends. Suddenly- this joyous distraction ended. Family went home, decorations came down, the flurry of activity- waned into the routine of day to day (something which I generally welcome). I felt the let down this year-- big time. To busy myself up- I was thrown into full nesting mode. I sorted all of Moriah's baby clothes and pulled out everything gender neutral we own. I washed all the precious outfits and blankets that represent the hope of being able to change Samuel and snug him and feed him and have him spit up so I have to change him again. I prepared his bassinet and moved the rocking chair into - 'his room'. As my nesting instincts ignited- I began to dream. I wanted to do it all. To paint. To buy Mo new furniture- so we could move our 'baby' furniture into Sam's room. I am ready for his physical and mental healing-- here. Not in heaven but here.
Then- my Poppa passed away. Boom. Really- Lord? Now? Oddly- since we have had kids begin to enter the Kielan side of the family-- (something that has proved to be quite a feat all around)-- it seems that one of the older (or sometimes not very old) members of our family moves on. My Grandpa passed away a week after we found out we were expecting Moriah. My Uncle Grant passed away a week after Dan and Christine found out they were expecting Tate. And now Poppa-- but Poppa and Samuel-- really? In a span of 7 weeks? It couldn't be. It feels like too much. After my initial reaction - I began to take the storm in stride. Though I miss Poppa and I love him very much-- I know his current reality is better than the direction his health was taking him. It was my pleasure to at least play a small part in some of the preparations for his memorial and I enjoyed reconnecting with family that lives far away as we reminisced over his life.
Despite this- I could not write. Tears were not only a daily occurrence but flowed freely multiple times a day. My time with the Lord was not great- only because I tended towards other avenues of escape. I felt discouraged at the seeming unfairness of our situation and I felt low.
Then my 'surprise' book arrived in the mail. When I could not open my Bible - I opened this book (no replacement for my Bible whatsoever but still offering stories and words that I can relate to). I also began to listen to some online speaking sessions my mother-in-law directed me toward long before Christmas- but I finally felt the motivation to take the time with them. These sessions focus on the Missing Pieces in life-- the things in life that just do not seem to make sense. So- with a story unfinished and thoughts about life's missing pieces-- I began to realize that part of my paralysis to spend time with the Lord- or to write- over the last number of weeks- has been due to our impending due date. Though our story will not be finished in 4.5 weeks (or less- or possibly- a little bit more) the plot will thicken. Though there will still be many missing pieces-- a few more holes will be filled in.
When we first found out about Samuel's chromosomal disorder and resultant prognosis-- I could not have imagined making it to the new year-- let alone to our due date. I was sure that the Lord was going to take Samuel before this time and - to be honest- there is a part of me that really wanted him too. It seems that the sooner Samuel went home to be with the Lord-- the sooner- we could grieve and the easier it would be on our hearts to not really have known him. The very thought of a lengthy pregnancy -exhausted me. And- now- here we are: January 19, 2014. Now--- I am fighting for him. Now- I beg the Lord-- please do not take him before we have a chance to feel the warmth of his skin. To caress his baby soft head. To hear his cry. To get this close- and then to not have these precious moments- seems unbearable. I read about Matt Mooney's 99 day journey with his son and it both intrigues me and exhausts me. It causes me to fear what life may look like over the next while- yet it gives me hope that we will have time to know Samuel. It causes me to fear for Moriah's well being (in wake of the emotions surrounding time with her brother) yet it causes me to dream with her regarding all the plans she has already laid out for herself as a big sister (my favorite of which is-- Daddy will take care of the poopie diapers but I (Moriah) will take care of the pee ones-- sounds like a great deal for Mommy!).
In combination with the encouragement I have found through my listening and reading over the last little bit- I have also found much encouragement from our dear friends and church family. Last Monday - we were blessed by many people in our church community and beyond who spent time fasting, listing to the Lord and surrounding us in prayer. Though we have been offered prayer by many- we wrestled with accepting (specifically in a group context)- when we initially found things out. It is hard and humbling to receive prayers from your community-- why? I am not sure. But it is. Our dear friends gently persisted in asking us-- and the Lord prompted us to respond. Why would we not take them up on this offer? What pride issues are in our way- to cause us to prevent our church body from being obedient to the type of actions God calls us to in community? What self consciousness in me would outweigh the gifts of being surrounding in prayer. And - oh what a blessing that time was. We were filled with peace and rest as we kept our eyes on Him and as our community pleaded with the Lord for healing of our son. We were filled with reassurance as a room full of people showed their love for our precious Moriah- and prayed protection over her in this time. We were genuinely cared for as our marriage was prayed for. As the medical teams that we are and will be dealing with were prayed for and as God was glorified- despite the uncertainty that we currently face. Our hope was renewed. I woke up the next morning and I felt covered (Under His wings- did I find refuge). Once again - our arms felt lifted up- in this battle that days before we were losing because we were not tapped into the source that will fight for us. Our home experienced a renewed sense of joy and a lightness though no medical prognosis has been changed and though the outcome is still pending.
I believe that God can heal Samuel. In an instant. I even feel giddy at the thought that such is already the case. But my heart is guarded. I have seen God give (or heal) and I have seen him take away. I do not understand how He decides which action to take at which time-- but I know He is in both and I still believe He is good. (Samuel- liked those words-- HE IS GOOD-- he gave a double flip flop- just at the sound of them!).
Please continue to stand with us in prayer. We need you.
Pray for a continued peace that passes all understanding
Pray that we will hear God- in each moment of our day- that we will see Him and that we will rest in Him.
Pray for labour and delivery-- not only because it is approaching but also because we have some upcoming meetings with the staff at Langley hospital to try to best prepare ourselves and the staff for all the unknowns.
Pray for our Doctor- Dr. Hansen-- that God would give him wisdom and sensitivity to His direction over the next number of weeks as we have weekly appointments.
Pray for Moriah- who has been experiencing many bad dreams and unsettled feelings over the the last couple of weeks-- we know this is taking an emotional toll on her.
Pray that our words, actions, responses, blog would point to Christ- for that is the only way we see any redemption in any of this.
Pray for Samuel- for his healing. Pray that we will get to bring him home. Pray that his mind will function healthily and that his body will be whole.
Thank you for taking the time- to catch up and to walk with us. I will try to give more regular updates - even if they are quick ones! Bless you.
Seren
Wednesday, December 25, 2013
Hope
Merry Christmas! I hope all who are reading this- are enjoying a blessed and full day with family, friends, tradition and celebration. I LOVE Christmas. We are so blessed to have our Wiens' family here this year. We have been enjoying too many Christmas goodies, some good Christmas movies, a birthday party for Jesus, a few (okay- maybe more than a few) exciting gifts and some great family hangout time.
How exciting it is to celebrate our Saviour's birth today! What hope we have in Him. At last night's Christmas eve service- our pastor talked about Hope. He differentiated wishing and hoping. Highlighting wishing as something that we project into our future-- we wish for certain things that we often have control over attaining or creating for ourselves -- or that we think best suits us. He highlighted hope as something that we have in Christ -- hope is something that is in our future because we know that God is in our future, He knows our future and overall-- HE IS GOOD. The passage we focused on is found in Hebrews 6:18-19--
"God has given... His promise... therefore, we who have fled to Him for refuge can have great confidence as we hold to the hope that lies before us. This hope is a strong and trustworthy anchor for our souls."
I love this picture of our hope in Him being our anchor. As we face our current storm- He is truly our anchor. I am so thankful I am not simply adrift in these stormy seas.
Yesterday- God blessed us with a precious Christmas gift. Though Samuel's prognosis remains the same-- we had an uplifting Doctor's appointment. We are currently 32 weeks. Measuring at 31 weeks. Samuel had a strong, snapping (- which is a good thing) heartbeat-- at 148 to 150 bpm. His movements have increased in the last 3-4 days and we have been enjoying celebrating him so much. If you had asked me at 19 weeks (when we found out about his T18) whether I thought I would make it emotionally or whether Samuel would make it physically until 32 weeks-- I would have been very skeptical. Now - here we are-- only 8 weeks away from our due date. Now- we know that T18 is nasty- and Samuel can still pass at any point-- but our appointment yesterday- still left us feeling encouraged and with hope.
Please continue to pray for Samuel's complete healing (I suppose this is a wish-- but is also a hope-- as we know that HE (Christ) is able). Please also pray that we are able to keep our eyes fixed on Jesus. That we would remember why we celebrate Christmas this year-- that God sent His one and only son to us-- a King in the form of a baby. A human baby-- who would grow and experience temptation, trial, excitement, sadness, pain and joy. A baby that allows for us to have a personal relationship with a God who truly understands us. This is the Saviour that came to redeem a broken world. The same Saviour who provides Chris and Moriah and I with the hope for redemption in our current brokenness.
May you be filled with Hope and peace today. Enjoy your turkey dinners!!
How exciting it is to celebrate our Saviour's birth today! What hope we have in Him. At last night's Christmas eve service- our pastor talked about Hope. He differentiated wishing and hoping. Highlighting wishing as something that we project into our future-- we wish for certain things that we often have control over attaining or creating for ourselves -- or that we think best suits us. He highlighted hope as something that we have in Christ -- hope is something that is in our future because we know that God is in our future, He knows our future and overall-- HE IS GOOD. The passage we focused on is found in Hebrews 6:18-19--
"God has given... His promise... therefore, we who have fled to Him for refuge can have great confidence as we hold to the hope that lies before us. This hope is a strong and trustworthy anchor for our souls."
I love this picture of our hope in Him being our anchor. As we face our current storm- He is truly our anchor. I am so thankful I am not simply adrift in these stormy seas.
Yesterday- God blessed us with a precious Christmas gift. Though Samuel's prognosis remains the same-- we had an uplifting Doctor's appointment. We are currently 32 weeks. Measuring at 31 weeks. Samuel had a strong, snapping (- which is a good thing) heartbeat-- at 148 to 150 bpm. His movements have increased in the last 3-4 days and we have been enjoying celebrating him so much. If you had asked me at 19 weeks (when we found out about his T18) whether I thought I would make it emotionally or whether Samuel would make it physically until 32 weeks-- I would have been very skeptical. Now - here we are-- only 8 weeks away from our due date. Now- we know that T18 is nasty- and Samuel can still pass at any point-- but our appointment yesterday- still left us feeling encouraged and with hope.
Please continue to pray for Samuel's complete healing (I suppose this is a wish-- but is also a hope-- as we know that HE (Christ) is able). Please also pray that we are able to keep our eyes fixed on Jesus. That we would remember why we celebrate Christmas this year-- that God sent His one and only son to us-- a King in the form of a baby. A human baby-- who would grow and experience temptation, trial, excitement, sadness, pain and joy. A baby that allows for us to have a personal relationship with a God who truly understands us. This is the Saviour that came to redeem a broken world. The same Saviour who provides Chris and Moriah and I with the hope for redemption in our current brokenness.
May you be filled with Hope and peace today. Enjoy your turkey dinners!!
Thursday, December 12, 2013
Jehovah Jireh- My Provider
"If you are a mother, you have a calling from God. God entrusts into your care a life, a future, a piece of what the world will become" (Jean Fleming- "A Mother's Heart", 17).
Yesterday- I felt defeat. I sunk in despair. I wept in the shower. I lost patience with Moriah. Yesterday felt like too much. I cried out to God and asked- "Why did you choose me for this journey?".
I tried to shift to a mindset and heart set of surrender. As I wrote in my journal- I waved my white flag. I admitted my inadequacy to walk this path alone. But my disappointment, my fear and my hurt took precedence over my joy, my trust and my knowledge of Christ's love for me.
In my turmoil yesterday- a dear friend indirectly redirected me back to the story of Abraham and Isaac. (Yes- I am going to reference it again). Abraham had been made a promise that he would be the father of a great nation. And then- he waited. After waiting--- a long time-- he received the promise of his son Isaac. Just when all seemed to make sense- God said, "Take your only son, the son you love, and go to the land of Moriah. Kill him there and offer him as a whole burnt offering on one of the mountains I will tell you about". There is NO record of Abraham questioning the Lord. He walked in obedience. He took his stance (based on what God had asked of him- this relates back to one of my earlier posts regarding the words God offered me through Chronicles). He did not make alternate plans (like- I think I will take this ram with me- just in case-- God needs my help to change his mind). He spoke in faith (when Isaac said- 'we have everything- but where is our sacrifice?" Abraham responded with "God will provide"). Abraham put God before all else and acted in complete surrender. Abraham went with no map-- he just walked as God directed in the direction he was told to go.
Jehovah Jireh- The Lord Provides. This is what I heard yesterday-- though I was not able to receive it until this morning. He will provide a lamb in the thicket today-- whatever we need today-- He will provide.
This morning- my provision was hope. I am a part of a Facebook group for individuals who have children with Trisomy 13 or 18. In the last week- two different families have shared their stories of signs of healing. They do not know the final outcome- but they have seen healing.
I have shared before- that I believe God will heal Samuel- I just do not know what this healing will look like. Will it be physical and mental healing- for Samuel here on earth-- or will it be the ultimate healing of going home to live with our Father.
Today- I need to believe in a miracle-- this brings to mind some friends of mine from high school who have had a different journey with their precious daughter over the last year and a half-- they have blogged their story- 'Believing in miracles, Not maybes.' Their faith and their journey has touched me many times. They held onto the hope of Christ's healing in their daughter's life and they experienced answers to prayer- like never before. Their journey continues but they have seen God provide- "immeasurably more than they could have asked for our imagined".
I know many of you- pray for us and for Samuel on a regular basis-- would you stand with me today and pray for his complete healing.
Pray for his body from head to toe:
Pray for the cysts on his brain
Pray for his cerebellum (at the base of his brain) which is being sucked down into his spinal cord.
Pray for his heart (which has a hole in it but is still beating as strong as ever)
Pray for his open spina bifida-- would God straighten his spine and close his skin overtop of it- so that it will not be exposed when he is born.
Pray for his lower body- that his cysts, cerebellum or spina bifida- would not have the paralysis affect that is expected.
Pray for his joins- his clenched fingers, locked wrists, clubbed feet. Pray that these would be straightened and healed completely.
Pray for his feet- right now they are rocker bottom (shaped like a rocking horse)- pray that they are given arches (even flat arches- like his Dad -- would be good with me!)
Pray for any other anomalies that ultrasounds may have not picked up.
Overall- pray for the removal of the extra 18th chromosome.
I do not know how our story ends. I do not have a map. Today- my lamb in the thicket is hope of healing. Tomorrow it may be something different. What I do know is that Jehovah Jireh- will provide what we need today-- if we take our stance and walk in obedience to Him. This is not our battle - it is His to fight. Thank you again for walking with us.
Yesterday- I felt defeat. I sunk in despair. I wept in the shower. I lost patience with Moriah. Yesterday felt like too much. I cried out to God and asked- "Why did you choose me for this journey?".
I tried to shift to a mindset and heart set of surrender. As I wrote in my journal- I waved my white flag. I admitted my inadequacy to walk this path alone. But my disappointment, my fear and my hurt took precedence over my joy, my trust and my knowledge of Christ's love for me.
In my turmoil yesterday- a dear friend indirectly redirected me back to the story of Abraham and Isaac. (Yes- I am going to reference it again). Abraham had been made a promise that he would be the father of a great nation. And then- he waited. After waiting--- a long time-- he received the promise of his son Isaac. Just when all seemed to make sense- God said, "Take your only son, the son you love, and go to the land of Moriah. Kill him there and offer him as a whole burnt offering on one of the mountains I will tell you about". There is NO record of Abraham questioning the Lord. He walked in obedience. He took his stance (based on what God had asked of him- this relates back to one of my earlier posts regarding the words God offered me through Chronicles). He did not make alternate plans (like- I think I will take this ram with me- just in case-- God needs my help to change his mind). He spoke in faith (when Isaac said- 'we have everything- but where is our sacrifice?" Abraham responded with "God will provide"). Abraham put God before all else and acted in complete surrender. Abraham went with no map-- he just walked as God directed in the direction he was told to go.
Jehovah Jireh- The Lord Provides. This is what I heard yesterday-- though I was not able to receive it until this morning. He will provide a lamb in the thicket today-- whatever we need today-- He will provide.
This morning- my provision was hope. I am a part of a Facebook group for individuals who have children with Trisomy 13 or 18. In the last week- two different families have shared their stories of signs of healing. They do not know the final outcome- but they have seen healing.
I have shared before- that I believe God will heal Samuel- I just do not know what this healing will look like. Will it be physical and mental healing- for Samuel here on earth-- or will it be the ultimate healing of going home to live with our Father.
Today- I need to believe in a miracle-- this brings to mind some friends of mine from high school who have had a different journey with their precious daughter over the last year and a half-- they have blogged their story- 'Believing in miracles, Not maybes.' Their faith and their journey has touched me many times. They held onto the hope of Christ's healing in their daughter's life and they experienced answers to prayer- like never before. Their journey continues but they have seen God provide- "immeasurably more than they could have asked for our imagined".
I know many of you- pray for us and for Samuel on a regular basis-- would you stand with me today and pray for his complete healing.
Pray for his body from head to toe:
Pray for the cysts on his brain
Pray for his cerebellum (at the base of his brain) which is being sucked down into his spinal cord.
Pray for his heart (which has a hole in it but is still beating as strong as ever)
Pray for his open spina bifida-- would God straighten his spine and close his skin overtop of it- so that it will not be exposed when he is born.
Pray for his lower body- that his cysts, cerebellum or spina bifida- would not have the paralysis affect that is expected.
Pray for his joins- his clenched fingers, locked wrists, clubbed feet. Pray that these would be straightened and healed completely.
Pray for his feet- right now they are rocker bottom (shaped like a rocking horse)- pray that they are given arches (even flat arches- like his Dad -- would be good with me!)
Pray for any other anomalies that ultrasounds may have not picked up.
Overall- pray for the removal of the extra 18th chromosome.
I do not know how our story ends. I do not have a map. Today- my lamb in the thicket is hope of healing. Tomorrow it may be something different. What I do know is that Jehovah Jireh- will provide what we need today-- if we take our stance and walk in obedience to Him. This is not our battle - it is His to fight. Thank you again for walking with us.
Monday, December 9, 2013
God's Handiwork
Psalm 139:13-16
For you created my inmost being,
you knit me together in my mother's womb.
I praise you because I am fearfully and wonderfully made;
Your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place.
When I was woven together in the depths of the earth,
your eyes saw my unformed body.
All the days ordained for me
were written in your book
before one of them came to be.
I have always loved this passage. I have meditated on it. referenced it and hung onto it- many times in my life. As we journey with Samuel- I find that - while it is a passage that still brings me much comfort- it simultaneously stirs up questions.
I believe that God has created Samuel's inmost being. He is knitting Him together in my womb. His frame is not hidden from God- in fact God saw his unformed body. God knows how many days Samuel will have in my womb. He knows how much time Samuel will have on earth and He knows the exact hour He will call Samuel to come home to be with Him.
I am struggling with understanding how God's knitting includes an extra chromosome. Did God intend Samuel to be knit this way? Or- is Samuel's extra chromosome a result of the fact that we live in a fallen world? When I was little and suffered from asthma- did God knit asthma into my system or was my asthma a result of the fallen world that we live in? My mom suffers from a chronic illness- did God knit her that way or is it resultant of the fallen world that we live in?
I had someone respond to a previous post- encouraging me to remember that Samuel is perfect in God's eyes- perfect. Is this true? Does God see Samuel's extra chromosome as perfect. Did He intend for Samuel to have cysts on his brain, troubles in his heart, open spina bifida, locked wrists, clubbed feet, paralysis? I do not doubt for a second that God LOVES Samuel totally and completely. But does God view him as perfect? Or does God's heart break for the struggles that life will bring for him? Is God intentionally knitting him this way? I have a hard time understanding that.
I have no answer to this query- but I have wrestled with it a bit over the last week or so. I do not know if I will ever find an answer- but I do feel like it is okay to ask.
We were blessed with the experience of a 3D ultrasound this past weekend. Samuel was face down, with part of my placenta blocking a part of his face at times and the umbilical cord was over his face-- thus causing our view of him to be somewhat obscured. However, we were still able to get some pictures of him and to view his precious being for just under an hour. How good it was to see him again. He is beautiful.
My heart was hopeful - going into the ultrasound. I hoped to have the technician show complete surprise regarding that we thought anything would misshapen or abnormal. Instead- she intimated that she was surprised that we had chosen to continue to walk this path of pregnancy rather than terminate.
As I watched his precious face on the screen. As I observed the obscure shape of his spine. As I more clearly saw the disfigurement of his limbs- I hurt for him-- yet I thought he was beautiful. I could have watched the screen for hours. I have loved every moment of our take home dvd and picture slide show. One of my favourite parts was when- in attempts to make him shift position- I gave him a few good pokes. You could see on the screen- where I was poking at him- as my uterus would sink in towards him-- as I poked- he reached his little hand up and placed it against my uterine wall- right where I was poking. It was as if I was holding his hand. What a precious little moment - that I have captured on dvd forever.
This ultrasound brought me such joy, such hope, such excitement --- yet such sadness at the thought that Samuel's future is still so unknown. Unknown but not undetermined- which brings me back to Psalm 139-- All Samuel's days and (my days, Chris's days, Moriah's days) were ordained for him before one of them came to be. Though I have a plan as to how I long for these days to unfold-- I find hope in the fact that God already knows the outcome-- and that He promises to lead us and guide us if we willingly follow Him.
Without further delay- I would like to share a few pictures of our precious baby.
He has the cutest little nose and lips. His little face is pressed between my placenta and uterine wall.
Here are his hands and feet. I have been reading and rereading a book titled " A Mother's Heart"- The author reminds us that "it is the very gospel of His grace that He can repair things that are broken" (38). He will make the crooked straight.
Another little face picture- cut off by something on the right hand side but precious nonetheless.
For you created my inmost being,
you knit me together in my mother's womb.
I praise you because I am fearfully and wonderfully made;
Your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place.
When I was woven together in the depths of the earth,
your eyes saw my unformed body.
All the days ordained for me
were written in your book
before one of them came to be.
I have always loved this passage. I have meditated on it. referenced it and hung onto it- many times in my life. As we journey with Samuel- I find that - while it is a passage that still brings me much comfort- it simultaneously stirs up questions.
I believe that God has created Samuel's inmost being. He is knitting Him together in my womb. His frame is not hidden from God- in fact God saw his unformed body. God knows how many days Samuel will have in my womb. He knows how much time Samuel will have on earth and He knows the exact hour He will call Samuel to come home to be with Him.
I am struggling with understanding how God's knitting includes an extra chromosome. Did God intend Samuel to be knit this way? Or- is Samuel's extra chromosome a result of the fact that we live in a fallen world? When I was little and suffered from asthma- did God knit asthma into my system or was my asthma a result of the fallen world that we live in? My mom suffers from a chronic illness- did God knit her that way or is it resultant of the fallen world that we live in?
I had someone respond to a previous post- encouraging me to remember that Samuel is perfect in God's eyes- perfect. Is this true? Does God see Samuel's extra chromosome as perfect. Did He intend for Samuel to have cysts on his brain, troubles in his heart, open spina bifida, locked wrists, clubbed feet, paralysis? I do not doubt for a second that God LOVES Samuel totally and completely. But does God view him as perfect? Or does God's heart break for the struggles that life will bring for him? Is God intentionally knitting him this way? I have a hard time understanding that.
I have no answer to this query- but I have wrestled with it a bit over the last week or so. I do not know if I will ever find an answer- but I do feel like it is okay to ask.
We were blessed with the experience of a 3D ultrasound this past weekend. Samuel was face down, with part of my placenta blocking a part of his face at times and the umbilical cord was over his face-- thus causing our view of him to be somewhat obscured. However, we were still able to get some pictures of him and to view his precious being for just under an hour. How good it was to see him again. He is beautiful.
My heart was hopeful - going into the ultrasound. I hoped to have the technician show complete surprise regarding that we thought anything would misshapen or abnormal. Instead- she intimated that she was surprised that we had chosen to continue to walk this path of pregnancy rather than terminate.
As I watched his precious face on the screen. As I observed the obscure shape of his spine. As I more clearly saw the disfigurement of his limbs- I hurt for him-- yet I thought he was beautiful. I could have watched the screen for hours. I have loved every moment of our take home dvd and picture slide show. One of my favourite parts was when- in attempts to make him shift position- I gave him a few good pokes. You could see on the screen- where I was poking at him- as my uterus would sink in towards him-- as I poked- he reached his little hand up and placed it against my uterine wall- right where I was poking. It was as if I was holding his hand. What a precious little moment - that I have captured on dvd forever.
This ultrasound brought me such joy, such hope, such excitement --- yet such sadness at the thought that Samuel's future is still so unknown. Unknown but not undetermined- which brings me back to Psalm 139-- All Samuel's days and (my days, Chris's days, Moriah's days) were ordained for him before one of them came to be. Though I have a plan as to how I long for these days to unfold-- I find hope in the fact that God already knows the outcome-- and that He promises to lead us and guide us if we willingly follow Him.
Without further delay- I would like to share a few pictures of our precious baby.
He has the cutest little nose and lips. His little face is pressed between my placenta and uterine wall.
Here are his hands and feet. I have been reading and rereading a book titled " A Mother's Heart"- The author reminds us that "it is the very gospel of His grace that He can repair things that are broken" (38). He will make the crooked straight.
Another little face picture- cut off by something on the right hand side but precious nonetheless.
Monday, December 2, 2013
Gender Reveal
On October 11, just over a week after we found out that our baby has Trisomy 18 and that he is a boy we decided to throw a gender reveal party for Moriah. I have always been a HUGE advocate of the gender surprise at birth. Experiencing this with Mo was one of the best surprises ever-- however, once we found out that we may not have the opportunity to meet our baby before his passing- we felt that it was important to find out his gender so that we could name him, bond with him and celebrate him- while we have him here (even if it is in utero) with us.
One way that we are able to celebrate him is to create memories surrounding who he is as our son and Moriah's brother. This is not only important to Chris and I but we feel it is important for Moriah - who is anxiously awaiting her sibling and is trying to process the fact that he is sick and may never play with us here on earth.
Enough said-- I could not help but share a few pictures- from that night (which Moriah still talks about). Our heavy hearts were eased and we truly celebrated together. What a precious family memory.
One way that we are able to celebrate him is to create memories surrounding who he is as our son and Moriah's brother. This is not only important to Chris and I but we feel it is important for Moriah - who is anxiously awaiting her sibling and is trying to process the fact that he is sick and may never play with us here on earth.
Enough said-- I could not help but share a few pictures- from that night (which Moriah still talks about). Our heavy hearts were eased and we truly celebrated together. What a precious family memory.
We started our evening by making one of our favorite meals- homemade pizza!
I had prepared a bin full of items that would act as decorations for our 'party'. Moriah knew that they would either be all pink or all blue and she knew that pink would mean she was having a sister and blue would mean she was having a brother! We were a bit nervous about her reaction as she has wanted a sister all along!
I think the balloons helped ease any of Moriah's disappointment surrounding the fact that we are not having a girl!
Moriah loved helping set the table with some of the goodies from the bin!
After leaving our banner up for a few days - Moriah requested it to be moved to her room. It is still hanging in there.
We are excited for the gift of our little boy!!!
A Daily Emotional Duel Contributing to my Dual Personality
This post is finally being published. I started it last Thursday but have not had the gumption or the time to complete it. Thank you to those of you who take the time to read and to pray.
The dichotomy of emotions we have felt over the last number
of weeks (never mind the last ten minutes) is uncanny. I feel like eight and a half weeks ago-
after we received Samuel’s prognosis- I began to grieve his loss. Now- here we are- less than twelve
weeks away from our due date – and Samuel is still very much alive.
The prognosis has not changed- but I find myself hoping and
dreaming for some precious snuggle time with my beautiful baby. I wish and long for a little brother
for Moriah to play with and push on the swing. I find myself picturing him
snuggled on my husband’s chest for a nap, and waking me up numerous times in
the night for feeds. I wonder what
his little nose will look like. Will
he look like Mo did as a baby or not? I long to experience his scent and to
hold him close; I long to bring him home; I long for him to not be sick and I
long to see him grow up.
Sometimes- my longing turns to believing and then ----Wham! I am contacted by the nurse
from Canuck place (who is wonderful by the way) who wants to know, if Sam is alive when I go into labour,
whether or not we want his heart monitored during the process as the stress of
his sudden passing can make labour more emotionally difficult. Or, in the event
that he does better than expected, we are asked whether or not we think we will
be comfortable to bring him home and administer comfort meds when he appears to
be in distress. Or, we are faced with the discussion regarding where we will
choose to bury him—and whether or not we want to make the decision now or in
the time immediately following his passing. These moments hurt.
Sometimes I feel like I am going to run out of breath and
not make it through and then I resurface. The other day I found myself sharing
my excitement for our pregnancy with a woman in a maternity store – only to get
into my car and realize that though the dress I just purchased is for Christmas
– I had subconsciously chosen it as something I could also wear to Samuel’s
memorial.
Often, I feel warmed by Moriah’s excitement for her brother.
Just the other day, she shared her desire to make a bed for Samuel in her room-
rather than in the ‘would be’ nursery.
And, often my heart breaks when she tells me that- if Samuel does not
get to play with us at all- or very long—and goes to be with Jesus- that God
will give her another brother or sister.
I love the memories of our gender reveal party (a party
solely for Moriah)—I love the genuine joy on our faces in the pictures – as if
this pregnancy comes with no worries or troubles but then I feel broken hearted
at the thought that the only reason we know who we are having is because we
needed something to hang on to – some excitement – in light of the news that we
received at that second ultrasound.
This dual of emotions spills over into my prayer life. One minute I find myself trusting and
praying for Samuel’s complete physical and mental healing and the next moment-
I chastise myself for not being in a total place of surrender that is okay with
whatever outcome the Lord chooses—and then the next minute I am back to
doubting myself for not praying with enough faith.
BE STILL.
TAKE YOUR STANCE—YOU WILL NOT HAVE TO FIGHT. I WILL FIGHT
THIS BATTLE FOR YOU.
As I write this- this is what I hear. Be still. Take your
stance. You will not have to fight.
As I write this- I am reminded that – when we feel too weak
to keep our hands lifted in surrender—we are surrounded by others who hold them
up for us. This always makes me think of Moses- when Aaron and Hur- provided
Moses with a rock to sit on and held up his hands when he was too tired to keep
his staff lifted high on his own.
Any time his staff was raised – the Israelites were successful in battle
but any time he let them drop- they were defeated- Exodus 17.
I want to keep my hands lifted high. I believe that – arms
stretched to him in trust and surrender (our stance) will mean that we do not
have to fight- He will fight for us.
This week there were many times our arms weakened – but you
(our friends and family and even some strangers)- held them high. You held them high by sending emails
and fb messages and cards of encouragement. You held them high through your prayers
for us. My parents held them high by taking Moriah last minute so that we could
have some much needed process time. A friend from church held them high by dropping
off another freezer meal; while an AIA colleague and friend brought us a zucchini
loaf. Our life group lifted us up
through prayer and offered words of encouragement and release from group when we
just needed a minute. My girl’s Bible study group- did not tire of hearing me
process what I really needed prayer for this week. A past colleague sent a text
full of encouragement, scripture and an offer to connect anytime. One of my
best friends reminded me of Ephesians 6 and she prayed His armor over me. My
mom took time to have an old school shopping date with me. One of the mom’s
from preschool sent me an encouraging article from a Christian living
magazine. Our sweet Hannah (who
lives with us) loved on Mo and helped keep our kitchen tidy. Our friend Becki stayed with us this
weekend and brought us laughter and has loved on Moriah in unbelievable
ways. My sister-in-law—sent an
email this morning sharing what God was saying to her (BE STILL) and as a
result she blessed me (especially cool since- I started writing this blog last
week and I had not yet shared with her that God had been saying the same to
me). My brother called- just
because. My mother-in-law faithfully checked in on us and continues to love us
well in this. I could go on and on
and on.
Our weeks have been filled with support and love and prayers for peace
that passes all understanding. Thank
you for holding our hands high.
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