Sunday, July 6, 2014

Blessed be the name of the Lord

The process continues- it has been a while since I last blogged.  Not even sure if anyone bothers to check in here anymore. However, this last week- I randomly met someone while we were camping who happened to know our story because she had been reading our blog which she was directed to by a friend of mine. This is not the first time that I have met a complete stranger who has known our story before meeting me.  After meeting her- I was reminded that this is a place that God uses to help me process as well as a place where I have seen Him inspire my thoughts and words and then use them to impact other people and, as a result, continue to redeem Samuel's story. I am not sure what shape this blog will continue to take but I will write when I feel convicted to do so.  The following feels a bit jumbled but- as I said it is a process- so please bear with me. 


Today marks five months since our precious Samuel entered this world and then peacefully slipped into eternity. My arms still ache. I long to hold him close. I grieve the fact that he is buried in a cemetery in Surrey rather than snuggled in a bassinet in our trailer (we are camping).  I long for his cries to wake me up in a few hours because he needs another feeding. I wish I could kiss his precious baby cheeks just one more time and I am sad that I will never know his little personality (or big one- if he would have been anything like his sister). 

I often get asked- how I am doing. A fair question for sure. Even appreciated as it makes me feel like others have not forgotten our son or our loss.   

My answer :

Well.  We are doing well.  We continue to experience a peace that passes all understanding. If prior to Samuel's birth I felt that an impending wave was coming toward us; a wave that felt like it may consume us, I now feel like the sea is settling and we have come up for air. We are still wet. Some days we feel a bit aghast. But our head is above the surface and we can breathe. Before ever conceiving Samuel, as I heard stories of other mother's losing their children or birthing a stillborn-- I remember thinking- Oh Lord that could never be me. I was rendered powerless at the thought of facing circumstances so horrific.  I was sure I would drown and never resurface. But we have.  God is good.  All the time.  He has carried us and has not just left us sputtering but we are resurfacing- we are being refreshed and we are breathing deeply and we have been given strength and even much joy. 

That said- our joy is still not absent of grief.  I had a friend tell me the other day that I am still not quite back to my old self. I have been chewing on this the last couple of days. It has bothered me. I thought I was doing particularly good- so what did she mean that I was not back to my old self? The more I have pondered this- the more I realize that my old self is exactly that- my old self.  It will never return. I have been changed by this experience. 

I walk in peace only by walking in surrender. 

When it snowed in February and March  and my mind wandered to my precious son being wrapped in a light blanket, buried in in a casket underneath all that snow-- I had to choose surrender. I had to choose to hang onto the hope that I have that my son is actually resting and giggling in the arms of Jesus.  

When another person complains about their pregnancy, their labour or their children-- I have to choose surrender. I have to choose to see them as Christ see's them and to love them with His eyes-- and then I can have empathy for their current feelings and I can walk with them in whatever they are struggling with. 

Our joy and grief dance together on a daily basis-- sometimes in subtle ways and sometimes in ways that are more potent.  

I have had a few moments in the last week in particular where this has been true. The other day, as I floated on an air mattress in the middle of a lake- I found myself feeling quite full of bliss.  The sun was shining, the air was warm, the water was refreshing and my surroundings were breathtaking. As I sat in that moment, breathing it in, the tears began to flow and out of my heart of complete joy I missed my son and I stood face to face with my grief. I LOVED that moment- it was beautiful, it was healing. 

Ultimately, I find rest in knowing that Samuel is whole and he is not suffering. Not only that but he is daily rejoicing with Jesus. He is already experiencing being face to face with Christ-- something that I can only continue to long for until my time here is complete. 

I feel conviction. I DO NOT want to miss what the Lord is saying. What is He calling us to through all of this. I feel discontent with living the status quo. I feel the pull to something more. He has put his finger on our lives. He has carried us through this. He continues to bring redemption to Samuel's story-- where is He leading us. What does He have for us out of this. I will never be the same- so what should the new me look like? 

 I am reading a book called "Kisses from Katie" (I highly recommend it). Today, I read the same page over and over again because every time I sat down to read- Moriah engaged me in the excitement of our surroundings. That said- maybe the Lord knew that today- on the day that marks Samuel's five month birthday and death anniversary-- I needed to be reminded of the verse that marked the start of my page--

 Job 1:21-- The Lord gave, and the Lord has taken away; blessed be the name of the Lord. 

Our story of Samuel brings me so much joy. He is such a gift. As I continue to share his story-- even when my heart aches- I not only choose to say- blessed be the name of the Lord but I truly believe that He is good. 




Saturday, May 10, 2014

The Scent of a Child

We passed another milestone this week.  The three month mark.  Three months? How can that be? It was four months from finding out about Samuel's diagnosis until his birth. Those four months lasted FOREVER.  Now it has been three months since his passing and I have no idea where the time has gone.  This scares me a little.  The further away we get from his birth, the further I feel from him. How can you love and miss someone so deeply that you only knew for 10 minutes? It is crazy.

My wonderful sister-in-law had made a shadow box with some pictures and keepsakes in it for Samuel's memorial. It still sits on our mantle. One of the keepsakes is the toque that he wore (Chris' Great Grandma had made it for our oldest nephew Mackenzie when he was born but it was always too small for Mackenzie so Mom saved it for us!) This toque was the only item that touched Samuel that I have not washed. This may sound crazy but on Tuesday night- I found myself watching the video from Samuel's memorial while opening up the shadow box, retrieving the toque and clinging to its scent. It still smells like my baby.  What a gift.

Moments of despair are not common right now. Overall, we continue to experience a peace that passes all understanding.  We walk in more joy moments than moments of grief -- but we still remember.

This week, Moriah has been remembering Samuel through a lot of tough questions.  Top on the list is- "How is Jesus in my heart and in heaven with Samuel?" Every time I try to answer her she quickly gets bored with my ramblings and dismisses me so I am kind of glad she keeps asking as she is forcing me to attempt to perfect my answer. I heard her ask Chris the other night but I did not hear his response.  In hopes that he had done a better job of answering her than me, I asked him later what he said. He admitted that his best efforts only allowed him to affirm the validity and quality of her question but that was about it.  I guess we both have a bit of work to do.

Tonight, Moriah remembered Samuel by asking when Jesus was going to go to the hospital again. When I asked her what she meant- she said she wanted to know if Jesus was going to go to the hospital to be with Samuel because he is still sick. In great gusto and joy- I reminded her that Samuel was no longer sick but that he was healed.  Her little eyes lit up-  and she said, "so does that mean that he gets to come home?" I had to retract and remind her that Samuel is only healed because he is in heaven with Jesus. If he was steal here he would be very sick still. For the first time, I told her a bit about the brokeness of his body (something his little sleeper hid well).  She was disappointed. She then informed me that she wished that Samuel could go camping with us. She often shows her grief by sharing the things she dreams of doing with him.

I cannot remember if I have shared this yet and I am not going to look back and check right now.  If I have- it is worth the repeat.  One of the most amazing gifts we continue to receive is her sensitivity to the Spirit. She is not a huggy child but every so often, she runs up and gives one or both of us a hug and then proceeds to tell us that Samuel gave Jesus a hug, Jesus gave her a hug and she is supposed to give us the hug so as to pass it along.

If you are still reading this. Thank you. Thank you for reading all along and checking back in for an update (despite the fact that I have been MIA for a while). We continue to covet your prayers. I will continue to write whenever I feel prompted. Bless you.

Tuesday, March 18, 2014

Having a Moment...

Today I miss my baby.  Overall, we have been doing well. Better than what I expected- to be honest. We get up each day.  Joy often comes with the morning.  And our life is moving forward. We are not moving on but we are moving forward. It is hard to believe that our precious Samuel Tekoa Wiens entered this world and then left it again almost six weeks ago already. Some days- it does not even feel like all this has happened and some days (or moments)- it feels all too real and raw.

I have been hanging onto a verse from Lamentations which our Pastor highlighted this past Sunday-- "Yet I still dare to hope" (Lamentations 3:21). 

Though we were caught off guard - blindsided really- with the news of Samuel's diagnosis- last October 1- we still dared to hope.  We hoped for His healing. We hoped for medical error. We hoped to see him not suffer. We hoped to have him- even for a short time. We dared to hope. We clung to hope. It held the darkness back and made facing each day possible.    

Though we were caught off guard with his quick and early arrival on February 6, 2014- we still dared to hope. We hoped for a cry and we got two small squeaks. We hoped for a snuggle and we got 10 precious minutes. We dared to hope. We clung to hope. In the midst of those moments- in the valley of the shadow of death- hope allowed us to breathe.  It allowed us to stay standing. It allowed us to see the gift we had been given in Samuel and the miraculous way in which the days circumstances unfolded.

Each day since Samuel's birth and death- we dare to hope. Each moment I spend with God- I find hope in the fact that the same God I am talking to and listening to is the God that- in the same moments- is holding my precious baby in His arms. Somehow- this eases my broken mama heart and my aching mama arms. If I close my eyes- I can almost picture the two of us sitting at the feet of Jesus together - it is just that one of us is doing so in a literal manner while the other is doing so figuratively. I cling to this hope.

We dare to hope in the redemptive nature of our Lord. We have hope in the fact that He is still good despite this loss. We have hope that He is using the story of Samuel to refine us and to impact others. We have hope that He is making right all that is broken in this situation. We dare to hope. 

We dare to hope that one day we will be reunited with our son-- oh what a glorious day that will be. What a gift- that we have that hope to hang onto. My longing for heaven has changed through this experience. And to think- our child- will be able to show us the ropes! We dare to hope. 

I started this post- clinging to the pictures below. The life in Samuel's eyes. The peace as his heart still beat (albeit slowly) against my chest. These pictures reflect the brief moments we had our son alive. Though I tried to memorize his face and his body in those moments and the hours that followed with him-  the time was too short- to really know him. Some days I close my eyes and I cannot see him. I can still smell him but I cannot see him. I can still feel his cheeks on my lips but I cannot see him. I can feel the weight of his body in my arms but I cannot see him. When I started this post- my hurt felt too raw. Too unfair. Too heavy. Yet upon reflection- I still dare to hope. 




Sunday, March 9, 2014

Joy Filled Moments

We celebrated/remembered the one month marker of Samuel's birth and death- this past Thursday.  Moriah has been asking to make a card to attach to a helium balloon to let go of and send to Samuel in heaven.  So she made a card, picked out two balloons (one for Samuel and one for her) and the three of us headed to 'Angel world' to remember our boy.

It was good to be back there.  I have NEVER understood why people visit cemetery's- especially those who believe that the body is simply the vessel of the person they love. I still do not really understand why- but I now understand the desire to do so. I have been wanting to head back to 'Angel World' for the last couple of weeks but I have not found the right time to do so. Moriah's enthusiasm to let Samuel's balloon go and our laughter over the fact that her card ended up being far too heavy to attach to the bottom of the string-- made our time at the cemetery somewhat chaotic and oddly enjoyable. Though my heart felt the grief of our loss -- I felt encouraged by our laughter. Ahh-- such mixed emotions.

I am not going to write much more- just a few captions as I share some snapshots of joy over the last month.

 Moriah is doing so well with her letters. She was so proud to write her name and Samuel's name on the front of his card- as well as to send him lots of hugs and kisses. 
 She wanted to draw him lots of pictures as well as have me include a special message. 
 She loves drawing wolves right now- so that is the white image at the bottom of the page- if you were wondering! :-)
 Here she is with her pink and red balloon-- she kindly picked the pink one for Samuel and the red one for herself!
 Moriah and her cousin decorating cookies together on Valentine's day! 
 The final product!
 Mmmm.... Moriah received her very own cake pop maker as a big sister gift! She tried it out while her cousins were here. She loves it!
 A cozy show while enjoying the snow! 
 Moriah also likes to try her hand at photography. She took this picture of me when the three of us visited Science world on Samuel's due date! This was our first visit as a family- we had lots of fun. Moriah even saw her first movie in a theatre! She loved it!
 Enjoying the lego exhibit!
 Having hot chocolate at one of our friend's houses! What fun!
 Celebrating the arrival of Violet!  My dear friend Mandy and I had the same due dates back when Moriah and and Jane were due. The girls ended up being two weeks apart. This time round Mandy was due two weeks after me- we were both expecting boys.  Surprise.... he actually was a she! Violet is a special gift to this Auntie who is in some serious need of baby snuggles.  

 Not sure we would label this a joy filled moment but I decided to include it.  Chris was hit in the mouth with a puck last Saturday night and received 12 stitches. On a happier note- the TWU Men's Hockey team is playing the deciding game of the first round of playoffs tonight!  We are hoping for a win! 

Friday, February 28, 2014

Some Muddled Reflections

Yesterday marked three weeks since Samuel's birth and passing.  I have wanted to write so many times but I just haven't. Navigating grief is exhausting.

I want to start by thanking all of you who have been walking with us.  How blessed are we to have so many people who have taken the time to love us through this. As we awaited Samuel's arrival- we were overwhelmed by the prayers, words of encouragement and overall care that we received by so many people. We were deeply touched by the number of people who came to Samuel's celebration(or birthday party- as Moriah would call it)-- wow- thank you. And we continue to be blessed by the gift of daily meals and delicious baking (I am never going to lose this baby weight).  SO- thank you to all those who have taken the time to care for us.  I cannot tell you how much this means to us.

What a joy it is to celebrate Samuel. The day of his celebration was truly beautiful for me. It was something that I feared so much prior to his birth and it turned out to be so-- perfect. Prior to the service- we held a family graveside service. My brother led and directed it, my parents secured all the details with the funeral home and each member of our immediate family shared things that the Lord had laid on their hearts. How beautiful these moments were.




I have an overwhelming fear of graveyards, hearses, coffins, dead people- you name it-- that stems from some serious spiritual attacks I faced as a child.  I was dreading this 'have to' event that needed to take place in order to bury our son-- but - in preparing for it and in experiencing it- I witnessed- once again-- God's goodness.  A number of months ago- as we still waited with hope- for Samuel's earthly healing-- I decided to take a round about way to my friend's house and to drive by the cemetery where we thought we might bury our baby. As far a Moriah was concerned we were just happily on our way to a play date.  She was singing away in the back seat and lost in her own little world. However, as we drove past the cemetery- she looked up and proclaimed- "Look Mom- it's Angel World."  I was astonished.  I inquired a bit as to what made her call this Angel world and she told me it was because there were Angels there.  Now- in all fairness- there is a big white statue (of Jesus) right near the front of the cemetery- so she could have seen this and - assumed it was an Angel-- but I am still not so sure.  She has amazed me with her sensitivity to the spiritual realm (have I told you that on the morning that we had Samuel- she came downstairs - before we went to the Doctor or knew that anything was up- and she said-- "Mom- I think my heart is going to break today"-- I told her that her heart was not going to break.  Little did I know that she would meet and lose her brother that day).



Anyway- back to Angel world.  As we planned Samuel's graveside- we were posed with the dilemma of how to present it to Moriah. We knew that we wanted her there- as it just did not seem right to not have her with us- but we did not know how to help things make sense for her (you try explaining the separation of body and soul to a three year old).  Once again, God showed us how He had His hand in Samuel's story from the outset.  I asked Mo if she remembered seeing Angel world and she did. She even reminded me that we drove past it in our old car. We were able to share with her that we would be burying a treasure box of our earthly memories of Samuel (that's all his body really is) and that it would be in a place that we could go back and visit if we felt like we really missed him and just needed a place to remember.  We took her shopping and let her pick out something that she thought that Samuel would love as we wanted her to have something tangible to picture in the treasure chest. She picked out a cow stuffie/blanket that is very similar to her Bun-bun (her favorite stuffie).  We decorated the cow stuffie up and we delivered                                                                       him to Granny and Grandpa's so that they could place him in the box for us.


On the day of the graveside- Moriah was excited to head to Angel world to bury our treasures of Samuel. Isn't that beautiful. What a gift this was to me. All my fears were laid aside- and as I gazed upon my baby's tiny coffin- all I saw was a treasure chest. And- as I closed my eyes and pictured its contents- I saw the precious memories I had of caring him in utero and of holding him in my arms. I can still close my eyes and feel the warmth of the sun on that brisk afternoon. I felt such peace.  We ended the service by releasing 38 blue balloons (representing the weeks in utero) and 1 red balloon (representing the time we had with Samuel). The release of these was such a beautiful moment.


















We proceeded from the graveside to the church- where the feeling of peace and joy continued. God's presence during worship (which was led by some of our dear family members), through our friends and family member's words, through the reading of a children's story, through the leadership of our pastor and friend and through the display of our slideshow (the gift of pictures from our dear friend Anita and the compilation of pics and songs by a friend from Power to Change) was tangible.
          Our Pastor and Friend Keith praying for us as we dedicate Samuel to the Lord.
 Our dear friend Ali reading "The Crippled Lamb" and a whole bunch of our little friends listening intently. 

 A glimpse of my sister-in-law's (Christine) gift to us. She took care of all the set up details for the service. 

The weeks that have ensued- have often carried this same tone of joy and peace-- but they have also carried the realities of grief.  I am finding much solace in reading. One of the books that our friends Mel and Michelle gave to us is called "I will carry you: The Sacred Dance of Grief and Joy".  This 'dance' is delicate and intricate. It fills our moments and our days right now. I have much to reflect on regarding this but exhaustion has hit tonight. I hope to continue writing new posts- I find much comfort and healing in doing so. We continue to pray that Samuel's story will have an impact and as a result- it will be redeemed.  Thank you for taking the time to read this.

We continue to need your prayers:
- Please continue to pray for Moriah's sleep.  She was doing really well but has begun waking up again- a couple times of night. She cannot bring herself to talk about her fears but our prayers would be that she would make it through the night without these fearful moments.
- Pray for my sleep- I have had a few panic attacks at night- and I dream often of losing people who are close to me. Please pray for peace in these areas.
- Pray for Chris and I- we process very differently.  We know this about each other and we are okay with it (though sometimes we drive each other crazy). Pray that we are sensitive to each other as we grieve in different ways. Pray that we SEE each other and really understand where we are at and pray that we continue to be drawn together in this journey.
-Finally- please pray that Samuel's story will continue to have an impact. 

Sunday, February 9, 2014

Samuel's Celebration and Dedication Service


We would like to invite you to join us as we celebrate God’s goodness in giving us our precious Samuel. Our journey has been tough but we believe Samuel’s brokenness can be redeemed through how God is and will use his little life as well as through how God is working and will work in our family. We have been so abundantly blessed by the role that so many of you have played in this journey. We do not take for granted the words of encouragement, the meals, the prayers or the friendship that has helped carry us through this time. We could not face tomorrow without you- our community. 
We are trying to make this service family friendly- so as to involve Moriah as much as possible and to allow our little friends to celebrate with us- as so many have prayed for baby Samuel in a sweet and innocent way.  Please feel free to bring your children. We are not afraid of a little noise.
Finally- please try and come with hearts of celebration.  There will be tears- because we are sad at our loss but our desire is to recognize and celebrate God’s goodness – despite our sorrow. 
When- Thursday February 13, 2014 at 3pm
Where- North Langley Community Church – 21015 96th Ave
There will not be a reception to follow.  We recognize that some people would like to give in some way. We will provide envelopes for donations for Canuck Place and for donations towards wheelchairs for our church’s (Jericho Ridge Community Church) upcoming Missions trip to Guatemala. 

Saturday, February 8, 2014

He was broken but he was beautiful.

Samuel Tekoa Wiens took us by surprise and entered the world on Thursday, February 6, 2014. I woke up Thursday morning with some heavy bleeding which caused us some concern.  We called our Doctor and we were in to see him by 9:40 am.  Once we were there the symptoms seemed less pronounced and- initially- our Doctor planned to send us home and to monitor us by seeing us the next morning. However- as we were about to leave- the bleeding increased and our Doctor sent us over to the hospital to be checked out.  While we were there - it was determined that I was in the early stages of labour.  I initially have - what my Doctor calls- silent labour (sorry to all those ladies- who do not have the privilege of experiencing this)-- which means I am in labour without really knowing it-- and when my labour actually begins- it is fast and furious (sorry gentlemen who do not want to hear these details).  We were told that after some blood tests we would likely be sent home but that our dear Samuel would be coming soon.  While we waited for the blood work- we passed the time by discussing what we thought Samuel would weigh, how long he would be and whether or not we would have him in the next twenty-four hours.  Moments after Chris said that he thought there was no way it would be that quickly-- our Doctor arrived and told us that they were preparing a room for us and that we would not be going home.  His prediction was that we would have Samuel by that evening (this was around 12:30pm). 

Before- I share more-- I have to tell you the most AMAZING miracle.  As we were in the examine room- the most precious and sweet head nurse- Rochelle- treated us with the utmost care. She received us like she would any other patient and her sympathetic and sweet spirit - immediately put us at ease.  While we were waiting for the blood work- she came in to tell us that, if we did need to stay, there was a nurse who was working who could not wait to have us as her patients. Soon we were settled into room 333 (the same room that Moriah was born in) with nurse Ruth.  It turns out that Ruth usually works weekends and she had decided to pick up an extra shift on Thursday.  Prior to us coming in- she had spoken to some of her colleagues that she wondered if her purpose in being there was to deliver our baby (as we have shared before- all the nurses knew we were coming at some point-- and due to the delicacy of our situation- there were mixed feelings regarding what this would be like).  Again- this was said before it was even on her radar that we were actually there.  When we met her- she told us that she had been praying for us since she had heard about us and that she felt privileged to walk through this with us. Praise the Lord for handpicking Ruth to journey with us.  

It was determined that I had a placental abruption- but it was hard to tell how severe it was.  As my labour increased a bit- there was some concern- due to the fact that I was beginning to lose a lot of blood.  So the hope was that my labour would increase quickly - as it did with Moriah (6.5 hours from start to finish) -- and that we could avoid having to do a C-section-- which would have been necessary if I began to bleed out.  This complication brought on some concern initially but we felt as though we were in good hands.  Dr. Hansen proceeded to break my water (1:40 ish) and then we waited. We called my parents to bring Moriah-- whom we had left at preschool that morning- with the intention of seeing her later in the afternoon.  We did not know how our journey with Samuel would unfold- and it was important that Moriah was a part of the journey and that she knew that we (especially Mommy) were okay.  As we awaited her arrival- my labour began to pick up-- not to anything excruciating but contractions were no longer silent.  She came in for hugs and I did my best to put my brave face on through the ever increasing contractions. We were able to tell her that the next time we saw her- she would get to meet her baby brother.  She left and my contractions picked up but so did the bleeding.  The staff had already hooked me up on one IV of fluid to help keep me hydrated due to blood loss but they felt the need to add a second IV so that they could prepare me for a blood transfusion.  At this point- labour became a bit scarier and Chris fired off a few texts just asking our family to pray. 

Another miracle side note- The maternity ward was not overly busy.  So not only did we have Nurse Ruth- whom God had hand picked for us-- but Rachelle, the head nurse acted almost as her side kick and she was amazing.  She also loves photography and offered to document as much as she could of Samuel's first moments.  In addition- though all the nurses know how to do IV's -- Nurse Franz is known in the ward for doing them the BEST.  Though she was not assigned to us- she made the time to come and insert both my IV's.  This process went as smoothly as I have ever experienced for an IV and Franz was such a beautiful - loving woman-- who made us feel like we were of the utmost importance.  We seriously felt like we were getting VIP treatment. 

Anyway- once the IV's were in place- Dr. Hansen came in and asked Franz to get some Oxytocin as he felt it was necessary to speed things up (again- due to blood loss).  Upon hearing this- we just asked that God would speed things up- so that the Oxytocin was not necessary.  While she was gone- over a 7 minute period- I suddenly had three contractions only minutes apart.  By the time she returned- there was no need for the Oxytocin. 

I quickly remembered that labour really is not fun and tried to focus on joyful thoughts every time a contraction came. Chris was my superstar sidekick- and he offered me his hand as well as loving words of encouragement as I laboured on.  I had moments of great fear- as I was aware of significant amounts of blood loss upon each contraction and - as I knew that we were finally going to know the plan that God had for our Samuel. I am so thankful that Chris was by my side and that we were both very aware of the Lord's presence. The nurses intermittently monitored Samuel's heart rate and I felt such relief- each time we heard his heart galloping like a little horse.  His heart rate rose - as it will for any baby at this point of labour- but not once was it in distress (another MIRACLE).

By 4:39pm-- just an hour and 40 minutes after we had seen our precious Moriah- Samuel entered our world.  I remember begging God that I would hear a cry- but there was no cry. He was instantly placed on my chest -- his eyes opened half way and he looked at me.  His body was so broken but he was so beautiful-- the moment was overwhelming.  As Chris cut the cord- Samuel circled his little mouth and tried so hard to make a sound- he made two teeny tiny little squeaks but it was too much. Dr. Hansen checked his heart and it was only 20-30 bpms.  Chris took him and held him.  He marveled at him and held his precious little hand and approximately 10 minutes after Samuel entered this world-- he left it- with no struggle, no gasping, no indication of pain. He passed from the arms of his amazing earthly father into the arms of his Heavenly father.  He was broken-- very broken-- but he was beautiful.

Oh what a moment. We had no fear. We loved on our little boy and we treasured him.  We were given the gift of having him in our arms until approximately 3:00pm the next day. We bathed him, we dressed him, we swaddled him, we hugged him, we sang over him, we read scripture to him, we prayed with over him. We introduced him to our family (some beautiful moments that I may shared details about at another time), we took photos of him, we explored his beautifully broken body and worked hard at committing each part of him to memory. 

And then- we released him. I think that was the hardest thing either of us have ever done. We placed our precious boy in a bassinet and we had to let our sweet nurse Jen (lots more nurse stories will follow in another blog as well) take him away.  We walked - what felt like a disastrous walk of shame- out of the hospital to our car.  Our arms are so empty and though our hearts are full they are so broken. 

I am exhausted.  There is so much more to share but this took everything out of me tonight.  Thank you for hearing Samuel's  story. We will continue to tell it.  There are so many miraculous moments we have yet to convey- I can hardly stand not saying them now.

PLEASE PRAY-
- We are tired.  Sleep is tough. Every part (physically, emotionally and spiritually) of me feels the ache of not mothering my baby in these days after his birth. We are walking in an exhausted fog- where we only wish that our exhaustion was due to the fact that we were up all not settling cries and giving feedings.
- Moriah's heart is broken. It shows in different ways and random times.  Tonight- she blurted out-- "But he (Samuel) was supposed to come and watch me swim" and then she burst into tears.  She is grieving.
- Praise God for the many ways that He answered prayer over the last few days!

I will end tonight with this- though Samuel's life was brief-- we would like to celebrate it. We will be having a celebration/a dedication of his life on Thursday - February 13. It will be open to anyone who has walked this journey with us- that is able to join us.  Details will follow over the next day or so. 






Wednesday, February 5, 2014

Today's Miracles

Thank you all for your prayers.  Today's Doctor's appointment revealed that Samuel has grown.  I measured 36 cm-- up from 34 cm (last week).  My Doctor still does not believe this to be fluid build up.  Samuel's heart rate was 140 bpm and it was the clearest that we have ever heard it.  Oh- please- keep praying for his complete healing!

Also- for those of you who have been praying for Moriah's bad dreams-- thank you.  Please keep doing so! She excitedly skips into our room - almost every morning- at 6:30am - and announces- "I had no bad dreams last night!" 

As I mentioned in my last blog- I have not been feeling well- due to a chest infection.  The last number of days have been really tough with this but my wonderful husband, my loving parents and some dear friends- have really helped out and I have had some good time to rest.  I started antibiotics  and I am already feeling much better-- please continue to pray health over Chris and Moriah and all those who have helped me out. 

I am going to bed tonight with a joy filled and hope filled heart. Oh- how I long to see my baby come out strong and healthy. Please believe with me that the seemingly impossible will be possible.

Ephesians 3:20-21--  Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, 21 to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.

Monday, February 3, 2014

Feeling Ningy

Ningy (Ning-ee) is a word coined by my Gramma (yes- this is how we spell it) Zucht and my Mom.  They would always give it to me as a word to use when I was feeling majorly 'off' but just could not explain what I was feeling or why I was feeling that way.  Though- I think I currently know the why regarding my feelings-- I cannot say that I can totally explain the what.

It has been approximately a week and a half since I blogged last.  Much has been going on in my heart and my mind since then.  I do not feel as though I will be able to do the workings of my heart justice tonight- so I plan to just give you an update.

Our last Doctor's appointment was last Wednesday (Jan 29).  It went well.  Samuel had grown much more than the week previously.  I was measuring 34 cm a jump from the 32 cm I had measured the week before (though he was measuring behind -- he has stayed fairly consistent in his slower growth- which is okay.  It is better than a huge drop off in growth).  Sam's heart rate was 146 bpm which is also good.  Furthermore- our Doctor believes that he is approximately 5-5.5 pounds (surprising for his condition). Dr. Hansen's response was -- "all bet's are off".  Now- I really wish that meant that we could be wrong about Sam having T18 and that he may in fact be a totally healthy little boy.  However, outside of the his total healing (which I find myself pleading with the Lord for), it simply means that we have a higher chance of meeting him alive (which is a miracle in itself-- but - like a cranky- ningy child-- I find myself wanting more).  We left our appointment with a mixture of hope and sadness.  This hit me hard.  I woke up the next morning not feeling well and the combination of my physical ailment and my emotions threw me into a state of extreme ningy-ness.  I muddled my way through Thursday and Friday-- putting on a brave face when I could and otherwise breaking down. My dear friend Kim- was at the receiving end of one of these breakdowns as our girls participated in swimming lessons together.  She never skipped a beat- as I melted she graciously encouraged. She hugged me, fed me, loved my daughter and genuinely walked with me through my frustration, hurts, hopes and fears.  So many of you have done this in so many ways over the last number of months (both for Chris and I individually and together) and we are truly grateful. 

My cold- or whatever I have- hit fully on Saturday.  As I spent time laying in bed - I just felt heavy.  I have not felt this heaviness in this journey yet-- and I do not really know what to do with it. I feel like I am losing traction.  I cannot believe that we are just over two weeks out from our due date. The unfolding of Samuel's story feels like it is barreling towards us-- and I want to cry out-- "Lord- please take this from me-- do not let my heart face such pain". 

The desert feels hot and dry.  We feel parched. We are dragging today. But three different times- over the last week-- God has given me a picture through scriptures from others.  The picture is that of our family being hidden under His wings and finding respite in His shadow. I have been reminded that He see's us and knows us. He see's the unfolding of this story-- He goes before us.

 Please pray. 

Pray for:
- Samuel- that he is healed
- This bug that I have- that it will pass and that I will not have it when going into labour
- Protection over Chris - that he will not get sick (and that Mo does not get it again-- pretty sure she already had it).
- Peace, joy, a full understanding of the shelter we receive under His wings and in His shadow
- Continued drive to turn to God and scriptures- even when feeling ningy
- Our doctor's appointment on Wednesday-- that Samuel will continue to show signs of growth

Despite the tone of this blog and the feelings that I have shared- I wanted to post a few pictures of the joy we are continuing to find in life. Peruse them- if you feel so inclined! Thanks again for reading. I will try to update after our appointment this week.

 Daddy's Birthday Breakfast
 Daddy's birthday Dinner and Cake- Mo got her own candle because she had a cold and we did not want her to share it with all of us :-)
 We were blessed to go to the hockey game on January 27. To my dismay- the wrong team won.
 This girl LOVES her Daddy!
 The bump! Mo loves hugging and tickling Samuel!
 A sunny February morning- found us in our backyard.  Moriah loves pushing her doll in the swing. She regularly tells me that she cannot wait to get to do this with Samuel. So - I end- with high hopes that I will be posting a similar picture to this-- sometime in the next number of months-- with Samuel in the swing. 

Thursday, January 23, 2014

A Quick Update

We are 36 weeks today and- in this moment I am feeling hope and peace. Moriah and I picked out the first outfit we would like Samuel to wear after he is born.  We picked out the receiving blankets we plan to take to the hospital and she insisted on sifting through her books and picking a few to put in Samuel's room-- she picked the one's that she thought he would like best.

The days following my last post have been up and down.  On Monday- we learned that Samuel had grown a little from the week before- but still not much.  Moriah and I heard his heartbeat and marveled at how it increased at the sound of her voice (so cool).  At the same appointment- we learned that there is much trepidation --on behalf of the medical staff where we will be delivering-- regarding our labor and delivery. I am going to choose not to share much on this-- as it makes me quite emotional and because I understand that our story carries with it many unknowns that are not only daunting to us but also to those who are being pushed out of their comfort zones as they care for us.  All I will ask (and I have asked it before) is that you please pray for those medical staff who are meant to be with us as this story unfolds.  Please pray that the right people are on shift at the right time. That they will see that we are just as scared as they are- and that we trust them implicitly - as we believe that they are (will be) hand picked for the job.  Pray for us to have a confidence in them (that results from our trust that God will orchestrate the right care team) and pray for the staff to have a confidence in their decisions and assessments of Samuel and myself. Pray for a peace that passes all understanding to reside in our labour and delivery room.  

Tuesday and Wednesday were tough.  I felt little to no movement-- to the point where I truly believed that our time with Samuel- in utero- had come to an end.  This resulted in a series of emotions, much prayer, practice of surrender, hurt and ultimately an odd peace.  I asked for God's grace as we celebrated Chris' birthday yesterday and I decided that I would not go to the doctor until today- to confirm the loss that I believed had taken place.  Chris and I were blessed with a wonderful evening out last night while Granny and Grandpa spent time with Mo.  Shortly after dinner and while we started our movie- Samuel decided he wanted to celebrate Daddy also- I do not think he has stopped squirming and kicking since.  It was this shift that caused Mo and I to move forward in hope as we picked out his outfit and blankets today. 

We were blessed once again by Chris' faithful Grandma.  She called today as she is aware that we are on the four week (ish) countdown.  As she would say- "in a month, everything will be revealed."  She said her word for us today is this reminder: "Let Him have all your worries and cares, for He is always thinking about you and watching everything that worries you and concerns you....He will not lay more on you(us) then you can handle."  Not only do I LOVE her reminder of a verse that has always been very dear to my heart but I LOVE the reminder that - this was something He has for us in order to help us face today.  We continue to put one foot in front of another- and to watch and see what the Lord will do. 

One final request-- Chris will be away on an overnight with Trinity Hockey this weekend.  We feel as though he should still go but I ask that you pray that there would be no fears of labor or anything else out of the ordinary-- while he is away. 

A picture of my kiddos and I. Before becoming a mom- I did not know love like this.  Thanks for reading and praying. 



Sunday, January 19, 2014

A Story Unfinished

I borrowed the title for today's blog from a book I am currently reading called "A Story Unfinished" by Matt Mooney.  The author and his wife had 99 days with their Trisomy 18 son- Eliot.  The book showed up in our mail a week or so ago.  Our dear friend Trevor sent it to us. Trevor had told Chris it was on its way- but I missed the memo-- so I was pleasantly surprised at this seemingly unannounced gift.  It came- just when I needed it.

I have not written since Christmas.  Many of you have checked in via email, text, phone and I even notice continued hits to our blog- despite my lack of updates.  Thank you for caring.  I have not had the words to write. Or- the emotional gumption. I apologize to those of you that have wondered if something is going on- as a result of my silence.  Our status stands.  Our last appointment was January 13.  Samuel had not grown much since our appointment three weeks earlier (so my weight gain really was due to all the Christmas goodies that we had kicking around our house :-)).  Despite this- his heart was still strong and my body shows no other signs of anything being out of order. We were 35 weeks this past Thursday which makes us 35.5 weeks today.  Only 4.5 weeks to go to the due date...

I suppose this is why I have had trouble writing. Christmas was a wonderful flurry of activity.  We had the most amazing time with family and friends.  Suddenly- this joyous distraction ended.  Family went home, decorations came down, the flurry of activity- waned into the routine of day to day (something which I generally welcome).  I felt the let down this year-- big time.  To busy myself up- I was thrown into full nesting mode.  I sorted all of Moriah's baby clothes and pulled out everything gender neutral we own.  I washed all the precious outfits and blankets that represent the hope of being able to change Samuel and snug him and feed him and have him spit up so I have to change him again.  I prepared his bassinet and moved the rocking chair into - 'his room'.  As my nesting instincts ignited- I began to dream.  I wanted to do it all.  To paint. To buy Mo new furniture- so we could move our 'baby' furniture into Sam's room. I am ready for his physical and mental healing-- here.  Not in heaven but here.

Then- my Poppa passed away. Boom. Really- Lord?  Now? Oddly- since we have had kids begin to enter the Kielan side of the family-- (something that has proved to be quite a feat all around)-- it seems that one of the older (or sometimes not very old) members of our family moves on.  My Grandpa passed away a week after we found out we were expecting Moriah.  My Uncle Grant passed away a week after Dan and Christine found out they were expecting Tate.  And now Poppa-- but Poppa and Samuel-- really? In a span of 7 weeks? It couldn't be.  It feels like too much. After my initial reaction - I began to take the storm in stride. Though I miss Poppa and I love him very much-- I know his current reality is better than the direction his health was taking him. It was my pleasure to at least play a small part in some of the preparations for his memorial and I enjoyed reconnecting with family that lives far away as we reminisced over his life.

Despite this- I could not write. Tears were not only a daily occurrence but flowed freely multiple times a day. My time with the Lord was not great- only because I tended towards other avenues of escape.  I felt discouraged at the seeming unfairness of our situation and I felt low.

Then my 'surprise' book arrived in the mail. When I could not open my Bible - I opened this book (no replacement for my Bible whatsoever but still offering stories and words that I can relate to). I also began to listen to some online speaking sessions my mother-in-law directed me toward long before Christmas- but I finally felt the motivation to take the time with them. These sessions focus on the Missing Pieces in life-- the things in life that just do not seem to make sense.  So- with a story unfinished and thoughts about life's missing pieces-- I began to realize that part of my paralysis to spend time with the Lord- or to write- over the last number of weeks- has been due to our impending due date. Though our story will not be finished in 4.5 weeks (or less- or possibly- a little bit more) the plot will thicken.  Though there will still be many missing pieces-- a few more holes will be filled in.

When we first found out about Samuel's chromosomal disorder and resultant prognosis-- I could not have imagined making it to the new year-- let alone to our due date.  I was sure that the Lord was going to take Samuel before this time and - to be honest- there is a part of me that really wanted him too.  It seems that the sooner Samuel went home to be with the Lord-- the sooner- we could grieve and the easier it would be on our hearts to not really have known him.  The very thought of a lengthy pregnancy -exhausted me. And- now- here we are: January 19, 2014.  Now--- I am fighting for him.  Now- I beg the Lord-- please do not take him before we have a chance to feel the warmth of his skin. To caress his baby soft head. To hear his cry. To get this close- and then to not have these precious moments- seems unbearable.  I read about Matt Mooney's 99 day journey with his son and it both intrigues me and exhausts me. It causes me to fear what life may look like over the next while- yet it gives me hope that we will have time to know Samuel. It causes me to fear for Moriah's well being (in wake of the emotions surrounding time with her brother) yet it causes me to dream with her regarding all the plans she has already laid out for herself as a big sister (my favorite of which is-- Daddy will take care of the poopie diapers but I (Moriah) will take care of the pee ones-- sounds like a great deal for Mommy!).

In combination with the encouragement I have found through my listening and reading over the last little bit- I have also found much encouragement from our dear friends and church family.  Last Monday - we were blessed by many people in our church community and beyond who spent time fasting, listing to the Lord and surrounding us in prayer.  Though we have been offered prayer by many- we wrestled with accepting (specifically in a group context)- when we initially found things out. It is hard and humbling to receive prayers from your community-- why? I am not sure.  But it is.  Our dear friends gently persisted in asking us-- and the Lord prompted us to respond.  Why would we not take them up on this offer?  What pride issues are in our way- to cause us to prevent our church body from being obedient to the type of actions God calls us to in community? What self consciousness in me would outweigh the gifts of being surrounding in prayer. And - oh what a blessing that time was. We were filled with peace and rest as we kept our eyes on Him and as our community pleaded with the Lord for healing of our son. We were filled with reassurance as a room full of people showed their love for our precious Moriah- and prayed protection over her in this time. We were genuinely cared for as our marriage was prayed for. As the medical teams that we are and will be dealing with were prayed for and as God was glorified- despite the uncertainty that we currently face.  Our hope was renewed. I woke up the next morning and I felt covered (Under His wings- did I find refuge). Once again - our arms felt lifted up- in this battle that days before we were losing because we were not tapped into the source that will fight for us. Our home experienced a renewed sense of joy and a lightness though no medical prognosis has been changed and though the outcome is still pending.

I believe that God can heal Samuel.  In an instant. I even feel giddy at the thought that such is already the case.  But my heart is guarded.  I have seen God give (or heal) and I have seen him take away.  I do not understand how He decides which action to take at which time-- but I know He is in both and I still believe He is good.  (Samuel- liked those words-- HE IS GOOD-- he gave a double flip flop- just at the sound of them!).

Please continue to stand with us in prayer.  We need you. 
Pray for a continued peace that passes all understanding
Pray that we will hear God- in each moment of our day- that we will see Him and that we will rest in Him.
Pray for labour and delivery-- not only because it is approaching but also because we have some upcoming meetings with the staff at Langley hospital to try to best prepare ourselves and the staff for all the unknowns.
Pray for our Doctor- Dr. Hansen-- that God would give him wisdom and sensitivity to His direction over the next number of weeks as we have weekly appointments.
Pray for Moriah- who has been experiencing many bad dreams and unsettled feelings over the the last couple of weeks-- we know this is taking an emotional toll on her.
Pray that our words, actions, responses, blog would point to Christ- for that is the only way we see any redemption in any of this.
Pray for Samuel- for his healing. Pray that we will get to bring him home. Pray that his mind will function healthily and that his body will be whole.

Thank you for taking the time- to catch up and to walk with us.  I will try to give more regular updates - even if they are quick ones! Bless you.

Seren